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The National Ataxia Foundation (NAF), the Friedreich’s Ataxia Research Alliance (FARA), and Ataxia UK are pleased to announce the rescheduled date for the inaugural International Congress for Ataxia Research (ICAR) to be held at Renaissance Dallas Addison Hotel in Dallas, Texas, USA. Please save the date for November 1-4, 2022.
Registration is open
. Abstract acceptance will be announced August 15th, 2022.

This Congress will combine the best of our organizations’ popular research meetings, including NAF’s Ataxia Investigators Meeting (AIM) and the International Ataxia Research Conference (IARC), co-led by FARA, Ataxia UK, GoFAR, and other partner organizations. ICAR 2022 will include plenary sessions, poster sessions, breakouts and workshops. Featured topics include: gene discovery, disease mechanisms, cerebellar non-motor circuits and functions, emerging and existing therapeutics, biomarkers and late breaking research. ICAR will also feature workshops with practical demonstrations, discussions on challenges of new and established technologies, and sessions specifically designed by and for junior investigators.

Click HERE to view the Provisional Program.

Click HERE to view the guidelines for poster presentations.


Trainee Mentorship and Social Events

The ICAR Trainee Organizing Committee (TOC) is planning several mentorship and social events at this year's conference. All young investigators are welcome, including current students, postdocs, and clinical trainees. If the word ‘Professor’ is not yet in your title, these are probably for you!

Click HERE for the Event List and Flash Talk Competition Information

Additional information and sign-up links will be available as the conference approaches.


On November 4th-5th, after ICAR, there will be the Conference of the Ataxia Global Initiative (AGI). The AGI conference brings together academia, industry as well as patient advocacy organizations and will focus on trial-readiness for ataxias. Delegates may be interested in attending both conferences as the programs are distinct and complimentary to each other. For more information or to register, visit the AGI website: https://ataxia-global-initiative.net/events/ataxia-global-conference-2022/

Please note that delegates can submit abstracts to both ICAR and AGI conferences but will likely not be invited to give the same oral presentations at both.


ICAR Scientific Steering Committee

Stefan Pulst, MD, Dr. med., University of Utah - Co-Chair
Massimo Pandolfo, MD, F.A.A.N., F.E.A.N., McGill University – CO-Chair
Roy Sillitoe, PhD, Baylor College of Medicine
Andrea Németh, DPhil, FRCP, University of Oxford
Deborah Hall, MD, PhD, Rush University
Ian Harding, PhD, Monash University
Lauren Moore, PhD, National Ataxia Foundation
Julie Greenfield, PhD, Ataxia UK
Elisabetta Soragni, PhD, Friedreich’s Ataxia Research Alliance


Trainee Organizing Committee

Gabriela Bolzan, MD, PhD, Universidade Federal do Rio Grande do Sul, Brazil
Ronald Buijsen, PhD, Leiden University Medical Center, Netherlands
Mohamed Elsaey, Dr. rer. nat., Suez Canal University, Egypt
Elisabetta Indelicato, MD, PhD, Medical University of Innsbruck, Austria
Layne Rodden, PhD, Friedreich's Ataxia Research Alliance (FARA)
Celeste Suart, PhD Candidate, McMaster University, Canada

As ataxia patient organizations, our shared mission is to find treatments and cures for the ataxias. We believe creating a collaborative research environment that promotes diversity, equity, and inclusion for all our stakeholders and partners is essential to achieving this mission. We are committed to equality of opportunity and insist that all those engaging in our community are treated with dignity and respect. We will ensure this at ICAR by fostering an environment that embraces diversity and inclusion and celebrates the contributions of all.