March 15th - 18th, 2022  -  Orlando, Florida, USA 

The National Ataxia Foundation (NAF), the Friedreich’s Ataxia Research Alliance (FARA), and Ataxia UK are pleased to announce the date for the inaugural International Congress for Ataxia Research (ICAR) to be held at the Caribe Royale resort in Orlando, Florida, USA. Please save the date for March 15th – 18th, 2022.

This Congress will combine the best of our organizations’ popular research meetings, including NAF’s Ataxia Investigators Meeting (AIM) and the International Ataxia Research Conference (IARC), co-led by FARA, Ataxia UK, GoFAR, and other partner organizations.  ICAR will cover aspects of cerebellar function, neurodegeneration, and treatment of ataxias, and will provide ample opportunities to network, as well as interact with ataxia patients and families.

As research on Ataxia continues to advance and pharmaceutical interest grows, international collaboration among patient advocacy groups, scientific and clinical researchers, and pharmaceutical companies is more critical than ever.  We are thrilled to be working together to host what will undoubtedly be hailed as the conference to attend in 2022!

Please save the date in your calendars.

Read the Press Release

Abstract Submission schedule

   Sep 9, 2021:  Abstract Submission & Registration Open
   Nov 8, 2021:  Abstract Submission Deadline
   Dec 15, 2021:  Abstract Acceptance Announced
   Jan 25, 2022:  Late Breaking Research Abstract Submission Deadline

If you have any questions about abstract submission, please email Liz Soragni at

ICAR Scientific Steering Committee

Stefan Pulst, MD, Dr. med., University of Utah - Co-Chair
Massimo Pandolfo, MD, F.A.A.N., F.E.A.N., McGill University – CO-Chair
Roy Sillitoe, PhD, Baylor College of Medicine
Andrea Németh, DPhil, FRCP, University of Oxford
Deborah Hall, MD, PhD, Rush University
Ian Harding, PhD, Monash University
Sue Hagen, National Ataxia Foundation
Julie Greenfield, PhD, Ataxia UK
Elisabetta Soragni, PhD, Friedreich’s Ataxia Research Alliance